Ross Lannon

Ross Lannon – who has Spinal Muscular Atrophy (SMA Type 2) – is a lifestyle & disability blogger from Cornwall. Often described as a ‘cheeky chappy’, he uses his platform to share comical lifestyle stories, as well as reviewing accessible events, activities and products.

With a passion to work within the media, Ross has used his blog in the past to document his various TV, magazine and radio appearances. Whilst promoting independence, Ross lives on his own with support from a team of carers, alongside his furry friend Ralph. As well as campaigning for more positive representations of disabilities, Ross also drives an adapted vehicle from his wheelchair. ‘A Life on Wheels’ follows his journey through adulthood, as a young man with a physical disability.

Ross’ talk
How do we finesse the art of starting, maintaining and finishing conversations about complex subjects? Well, stick around and I’ll tell you!

Who is your hero?
My dog. He inspires me to wake up everyday and provide food for his bowl

Where is your favourite place in the world?
My favourite place is HOME. Although I love to travel, I am also a real home-bug. I am so lucky to live in Cornwall, surrounded by family and beautiful beaches that are no more than a 15 minute drive away.

What is your greatest achievement?
Since starting my blog, I am most proud of the TV/media work I have achieved. I feel passionate about breaking down negative stereotypes surrounding people with disabilities. I have used my platform to discuss topics such as driving, dating and living independently.

I believe there should be more disabled role models within the mainstream media. I have appeared as a contestant on a BBC gameshow, as well as a background artiste on a primetime ITV drama. Most recently, I have also featured in several BBC articles online – surrounding young shielders during the pandemic.

What is your wish for the future of rare disease?
For positive representations and less social stigmas.