Daytime Disability – documenting my daily life with a rare disease
Photographer, University of Cumbria Class of 2020
Jordan Mossom is a photographer from Maryport, Cumbria, living with Duchenne Muscular Dystrophy. He graduated from University of Cumbria in 2020 after completing a photography degree – where his final major project ‘Daytime Disability’ documented his day to day life of living with a muscle wasting disease during the early part of the Covid-19 lockdown, to give an insight and spread awareness to what daily life is like for a disabled person
How I documented my daily life living with Duchenne Muscular Dystrophy as part of my photography degree at university.
Who is your hero?
Billy Monger is a hero figure for me – for letting cameras in to tell the story of life after his racing accident and double leg amputation, and the determination and strength he put in to overcome the hurdles to drive a single seater racing car again.
Where is your favourite place in the world?
Whinlatter Forest in the Lake District – I love the peace and tranquility of the place, and the way I can drive along the trails and escape from reality for a few hours.
What is your greatest achievement?
Completing my university degree and getting my story featured on the BBC News website
What is your wish for the future of rare disease?To find better treatments and innovations for those living with a rare disease, so they can lead and enable a better quality of life and much more independence.