Georgia Hart
Hot Topics Youth Panel

Georgia Hart
Youth Ambassador, Rare Youth Revolution
Georgia Hart is 23 years old and from the North East of England. She was diagnosed with Friedreich’s Ataxia when she was 15, and spent most of her teen years standing out when she just wanted to fit in. Georgia is determined to be someone to look up to, that little Georgia would have needed which is why Rare Youth Revolution and advocacy is so important to her.
Come and hear the RARE Youth team discussing topics that matter to us.
We are talking about growing up with rare conditions and managing mental health whilst going through life’s sometimes scary but exciting milestones in education, employment and relationships. We are sharing our own experiences on the subjects whilst tackling some taboos. If you want to know what it is like living with a rare disease, condition or disability and managing all it brings alongside life come and listen or if you are just starting out on your rare journey you might learn something new and hear some great advice and insights from our team. We can’t wait to share our experiences and hear from you if you can relate to our hot topics.