Saturday film





Cambridge Rare Disease Network - RAREfest | Film - Undiagnosed Children's Day 1


SynopsisApproximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. SWAN UK’s big ambition is that these families will have the support they need, when they need it.

This video celebrates all of the superheroes affected by undiagnosed genetic conditions. 

Undiagnosed children have to cope with a lot on a regular basis. Their bravery makes them superheroes. SWAN UK is the only dedicated support network for families of children and young adults with undiagnosed genetic conditions in the UK. 

Click to view the full video.

© 2018 – 2019 Cambridge Rare Disease Network  |  Website designed by Suzanne Morris  |  Read our privacy & cookie policy
Registered Office: c/o BCS Windsor House, Station Court, Station Road, Great Shelford, Cambridge, CB22 5NE  | 
Registered Charity Number: 1166365  | 
Company Number: 9798317
To contact us please send an email