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Cambridge Rare Disease Network - RAREfest | Film - Tess is not Alone USP7 Story 1

Tess is not alone – A usp7 story

Synopsis: When Tess was diagnosed with a rare mutation in her USP7 gene, her parents thought she was the only one in the world.

This extended version of the film includes more details about the disease and the search for answers, as well as interviews with other USP7 families. It also shares a plan about what to do next.

This 8-minute version premiered at DISORDER: The Rare Disease Film Festival in Cambridge, MA on October 2, 2017, and was shown at the Festival of Genomics in Boston, MA on October 3.

Please help find more patients by sharing this video.

http://usp7.org/

Click to view the full video.

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