Saturday exhibitor

exhibit synopsis & profile
Cambridge Rare Disease Network - RAREfest | Exhibit - NIHR BioResource 1


Rare Diseases

Synopsis: The NIHR BioResource for Translational Research is a national panel of volunteers who are willing to be approached to take part in research. Volunteers can be anyone with or without a health condition, who are willing to participate in research studies investigating the links between genes, the environment, health and disease. We want to increase the opportunities available for patients and the public to be involved in research and help speed up diagnosis and improve treatment options. We aim to help researchers to identify rare genetic variances, and enable a faster route to access a cohort of people for their clinical research. 

Bringing people together and leading research. 

Bringing all this data and resource together will benefit both patients and the public; and researchers in industry, academia and the NHS.

Research teams will be able to access large numbers of well characterised individuals. This will particularly help with the study of rare diseases where identifying and recruiting particular groups of volunteers and patients is complicated and can take time.

Patients will benefit too, and as the resource grows having larger numbers of people being able to participate in clinical research and trials of new drugs or treatments will enhance that research. Improved access to research volunteers will ensure that research can be completed quickly and effectively, making it easier to bring new treatments to market.

 Click to visit NIHR BioResource’s website.

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