Saturday exhibitorexhibit synopsis & profile
Synopsis: IMAGINE ID stands for; Intellectual Disability and Mental Health: Assessing the Genomic Impact on Neurodevelopment.
The IMAGINE ID study wants to answer a question parents often ask when their child has a genetic condition: “So what does this mean for my child?” Our study is working with families to collect information and do research hoping this will help with the care of families and children now and in the future.
Your family can take part if your child is 4 and over and has been diagnosed with a genetic condition which affects his/her learning. 2200+ families have joined the study so far.
Come and meet us at RAREfest18 to find out more about our study and to see our book, Avery. Avery was written and illustrated by Marta Altes in association with one of the IMAGINE ID Principal Investigator’s Professor Lucy Raymond and Pam Smy from Anglia Ruskin University.
The story is about Avery who is like other birds most of the time, but sometimes, feels a bit different. But Avery is not alone.
The book was written and inspired by children and families taking part in IMAGINE ID research.