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Saturday exhibitor

exhibit synopsis & profile
Cambridge Rare Disease Network - RAREfest | Exhibit - Dagmar Bennett 1


SynopsisAdam Pearson is an Actor (most recently ‘Under the Skin’*), TV Producer, Nerd, Grierson Presenter of the Year Nominee 2016 and 2017, Public Speaker and Campaigner against stigma against people with a visible facial difference.

Adam has Neurofibromatosis Type 1, a rare genetic condition that causes excess body tissue to grow predominantly on his face.

The artist Dagmar Bennett created a hyper-realistic sculpture of Adam, and through the tactile processes of this sculpture has allowed people to explore Adam’s personality and outlook on life.

“After hearing his story, and developing a friendship with Adam I felt inspired by his positive attitude, bravery and determination to break down barriers regarding how people with a disfigurement are viewed and treated. In my portrait, I was determined to capture these qualities and show him as an individual.”

Dagmar will be exhibiting her sculpture of Adam and discussing the process, purpose and impact of this work


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