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The Privacy Policy for the Cambridge Rare Disease Network website

Terms and Conditions


Events on this website https://camraredisease.org/ [Cambridge Rare Disease Network] is organised by Cambridge Rare Disease Network.  Registered Office: c/o BCS Windsor House, Station Court, Station Road, Great Shelford, Cambridge, CB22 5NE  | Registered Charity Number: 1166365  |  Company Number: 9798317. Bookings are administered by Eventbrite. 

Payments are administered by PayPal Inc

The following contact details should be used for any booking enquiries.

Email: jo@camraredisease.org


The organisers and their event partners endeavour to ensure that the information it provides through this website is accurate and accepts no liability for any errors and omissions. It is your responsibility to check your booking confirmation as errors need to be reported as soon as possible and cannot always be rectified.

The organisers maintain the right to alter or vary the programme due to events or circumstances beyond its reasonable control without being obliged to offer refunds or exchanges.


Once your booking has been received via the online booking system, you will receive a booking confirmation via email. Further details regarding the event will be sent out via email in due course.  We cannot be held responsible for the non-arrival of confirmation emails. If you do not receive a booking confirmation or have not heard from us, prior to the event, please contact the event office via email at jo@camraredisease.org.


All prices quoted on this website are shown in Euros. VAT is not included in all quoted prices and is additional to the ticket price at the prevailing rate (currently 20%).


Full payment must be received at the time of booking.

All payments made through this website will be administered by PayPal Inc. and will show on your credit card statement as CAMBRIDGE RARE DISEASE NETWORK.


Cancellations made 30 days prior to the event will not incur a fee and full refunds will be given.  Cancellations must be made in writing via email to jo@camraredisease.org.  All refunds will be made by the original method of payment.  Cancellations within 30 days prior to the event will incur the full ticket price and no refund will be given. 

Tickets can be transferred without any charge, but the event office must be notified in writing via email to https://camraredisease.org/ before the event, at least 10 days prior to the event.  

If you require a refund or would like to transfer a ticket, please email jo@camraredisease.org. All refunds will be processed within 48 hours.

Please be aware that we would rather be informed about a possible cancellation as soon as possible so that the place can be made available to someone else.


The personal information provided by you will be held on a database by the organisers. We will only contact you in relation to you your order and to inform you about updates to this event unless you indicated otherwise on our website sign up form.  You can update your preferences and unsubscribe to our emails at any time using the links in the footer of our emails.  To view our full privacy policy please see https://camraredisease.org/privacy-policy/