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Cambridge Rare Disease Network - Pharma Focus Collaboration 1

Collaboration with

CRDN & Pharma Focus

 

Giving patients a voice each month CRDN connects a rare disease patient or carer with Pharma Focus Magazine to allow them to share their story through the Patient Experience piece. This helps raise awareness and inform pharma professionals of particular rare conditions and the challenges they faced.

 

 

 

Cambridge Rare Disease Network - Pharma Focus Collaboration 2

Darren Taylor

Dercum’s disease

April 2020

Cambridge Rare Disease Network - Pharma Focus Collaboration 3

Carole Scrafton

EDS & other rare conditions

December 2019

Cambridge Rare Disease Network - Pharma Focus Collaboration 4

Lisa Pascoe

Desmoid tumour

November 2019

Cambridge Rare Disease Network - Pharma Focus Collaboration 5

Vaila Morrison

Ultra-rare condition KAT6A

July/August 2019

Cambridge Rare Disease Network - Pharma Focus Collaboration 6

Polly Moyer

Mal de debarquement syndrome

June 2019

Cambridge Rare Disease Network - Pharma Focus Collaboration 7

KATY BAKER

Scimitar syndrome

May 2019

Cambridge Rare Disease Network - Pharma Focus Collaboration 8

Rebecca Pender

Ultra rare Inv Dup Del 8p

April 2019

Cambridge Rare Disease Network - Pharma Focus Collaboration 9

Dan Jeffries

has not 1, but 2 rare conditions

March 2019

Cambridge Rare Disease Network - Pharma Focus Collaboration 10

Kay Parkinson

Alstrom syndrome

December 2018

Cambridge Rare Disease Network - Pharma Focus Collaboration 11

Helena Baker

Fibular hemimelia

November 2018

Cambridge Rare Disease Network - Pharma Focus Collaboration 12

Niamh ni Ruari

Cell Histiocytosis

October 2018

Cambridge Rare Disease Network - Pharma Focus Collaboration 13

Su Morris

Behçet’s disease

August 2018

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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