Bethan – Young carer sibling
This is Bethan. She is 9 years old and a younger sister to her brother who has a rare disease.
Rare Diseases impact the whole family, and Bethan has always had to take a back seat to the medical needs of her brother. In the last few years she has taken on the role of a young care giver, by helping the family and supporting her brother. Bethan is fortunate to receive support as a #YoungCarer from charities such as Blue Smile and Cambridge Rare Disease Network.
CamRARE’s Unique Feet group supports families of children with a rare condition in and around Cambridgeshire. Siblings and parents gain as much from meeting and connecting with others who have similar experiences and challenges, as the young people with a rare disease themselves. To enquire about joining, email us at firstname.lastname@example.org