Rare disease home nursing service debate

Cambridge Judge Business School Trumpington Street, Cambridge

Is there a need for a rare disease home nursing service? Join our debate. Join us on Thursday 17 March to share your views, ideas and solutions at an event chaired by Alastair Kent, Director of Genetic Alliance UK, and hosted by the Cambridge Rare Disease Network. When: 6:00-9:00pm, Thursday 17th March Where: Cambridge Judge […]

Cambridge International Rare Disease Summit 2016

Robinson College Grange Road, Cambridge

What can Cambridge contribute to global efforts in rare disease research? Who’s leading the way in collaborative, innovative research, treatment and care for those with rare diseases? How can we put patients and their families at the centre of all discussions? Hear from those leading the way in rare diseases  Where: Robinson College, University of […]

Cambridge Rare Disease Summit Oct 23 2017, Robinson College

Robinson College Grange Road, Cambridge

Following the success of our 2 previous summits, we are pleased to announce our 3rd annual Cambridge Rare Disease Summit. The CRDN International Summit 2016 has been selected as a finalist for the Communiqué Awards for Excellence in Communications via a Live Event or Stand-Alone Activity Venue: Robinson College, Cambridge will be hosting our event on 23rd […]

£25

Wellcome Genome Campus guided tour and talk

Wellcome Sanger Institute, Wellcome Genome Campus Hinxton, Cambridge

You are warmly invited to join the Cambridge Rare Disease Network on a guided tour of Cambridgeshire's Sanger Institute, at the renowned Wellcome Genome Campus, on Monday March 5 2018. This invitation is extended to all of the patients and patient groups who were involved in the Patient Journey poster booklet and exhibition for the […]

Pint of Science Rare Disease: The genomic revolution, searching for a cure for the 1 in 17

Thirsty Cambridge 46 Chesterton Road, Cambridge

Pint of Science Rare Disease: The Genomic Revolution - Searching for a Cure for the 1 in 17. Rare diseases are conditions which affect fewer than 1 in 2,000 people but 1 in 17 are affected at some stage in their lives, some 3.5 million in the UK alone. 75% of rare diseases affect children […]

Rare Disease Pint of Science: Treasure your exceptions! May 2018

Thirsty Cambridge 46 Chesterton Road, Cambridge

Cambridge Rare Disease Network brings a sip of Rare to the Cambridge Pint of Science Festival! A rare disease is one that affects fewer than 1 in 2000 people. You might wonder why anyone would dedicate their life to studying a disease when only a handful of people would benefit from a cure? Why not […]

RAREfest launch night: music, dance, talks

Guildhall Place, The Market Square

RAREfest18 is coming....Join us at the Guildhall on the Market Square in Cambridge for the launch of a brand new science, technology and arts festival for Cambridge! This #RAREfest18 launch event is an evening featuring powerful rare stories and talent expressed through both musical and dance performances... Full line-up and information about this launch evening […]

RAREfest18: Science, techology & arts exhibition

Guildhall Place, The Market Square

RAREfest18! A first-of-its kind rare disease inspired festival conceived and brought to you by Cambridge Rare Disease Network (CRDN). In Cambridge people come out in their droves to be dazzled and captivated by the annual Science Festival, it’s Festival of Ideas, the treasured Literary Festival and new to the circuit, Brainfest. We figured you simply can’t have too […]

Pint of Science 18: Researching the rare to understand and treat the common

Panton Arms 43 Panton Street, Cambridge

Researching the rare to understand and treat the common. Why would researchers focus their efforts on a rare disease which affects so few? A rare disease affects less than 1 in 2000 so why dedicate your life to studying a disease affecting so few? Why not one of the big killers like cancer or malaria? […]

Rare Disease Innovation and Collaboration: CRDN at Health Horizons

Corpus Christi College Lecture Theatre Trumpington Street, Cambridge

Cambridge Rare Disease Network brings a Rare Disease Innovation and Collaboration panel to Cambridge Biotech Week in Partnership with Global Innovation Cambridge Rare Disease Network (CRDN) is hosting a Rare Disease panel as part of the new Cambridge Biotech Week Health Horizons Future Healthcare Forum. Health Horizons Future Healthcare Forum is a high calibre, two-day conference […]

CRDN RAREsummit19: Patients as Partners

Wellcome Genome Campus Conference Centre Hinxton, Cambridge, Cambridgeshire

CRDN RAREsummit19 is a 1 day summit focusing on patient centricity in rare diseases - mastery, opportunities and trends in the drug development process, healthcare and assistive technologies. View the full RAREsummit webpages here  Join 250 attendees, 26 speakers and 32 exhibitors to discuss which are the most pertinent challenges and innovative solutions in ensuring patients […]

RCPCH 2020: Rare diseases in children – Collaborating and innovating for rapid progress

RCPCH Conference April 2020 RCPCH - Rare diseases in children: Collaborating and innovating for rapid progress - Symposium RCPCH Rare Disease Partner Banner British Paediatric Surveillance Unit team The BPSU in collaboration with Medics 4 Rares Diseases, Cambridge Rare Disease Network, Findacure and Rare Revolution Magazine will be hosting a half-day symposium at RCPCH Conference […]

“Rare Diseases, Leaving no one Behind” – a rare photo expo honouring life with a rare disease

United Nations Office at Geneva Palais des Nations, Genève

Hosted at the United Nations on the margins of the 43rd Session of the Human Rights Council, the exhibit is made possible thanks to the invaluable support of the Permanent Mission of Cyprus and the Permanent Mission of the Federative Republic of Brazil. Exposition opens 25 February 2020 at 12.30 United Nations Office at Geneva […]

Cambridge Rare Disease Day Rare-i-Tea Party 29 Feb 2020

Rowan Humberstone Ltd 40 Humberstone Road, Cambridge

Celebrate International Rare Disease Day with families and friends at CRDN's RARE-i-tea party! Cambridge Rare Disease Network (CRDN) invite you to join us for tea and cakes in celebration of this year's extra rare Rare Disease Day which falls in a leap year on 29th Feb 2020. We're delighted to be holding this friends and […]

Free

UnRavelled: Virtual Screening and Live Seminar

Online

Art, music and science intersect in UnRavelled, a new drama by award-winning, Los Angeles-based playwright Jake Broder. About this Event The Global Brain Health Institute presents the virtual premiere of UnRavelled, a new play about love, art and who we are on the most profound level. Based on true events and incorporating research and interviews conducted […]

UnRavelled: Virtual Screening and Live Seminar

Online

Art, music and science intersect in UnRavelled, a new drama by award-winning, Los Angeles-based playwright Jake Broder. About this Event The Global Brain Health Institute presents the virtual premiere of UnRavelled, a new play about love, art and who we are on the most profound level. Based on true events and incorporating research and interviews conducted […]

Health & Rare Disease Expo

Online

Our health and wellness Expo is Free, feature workshops with Patients and an Ask The Expert to hear from professionals to ask questions. About this Event Health and Rare Disease Expo Saturday, February 27, 2021 12pm- 2pm EST Carion Fenn Foundation presents our Health and Rare Disease Expo in partnership with Lakeridge Health & Ajax […]

UnRavelled: Virtual Screening and Live Seminar

Online

Art, music and science intersect in UnRavelled, a new drama by award-winning, Los Angeles-based playwright Jake Broder. About this Event The Global Brain Health Institute presents the virtual premiere of UnRavelled, a new play about love, art and who we are on the most profound level. Based on true events and incorporating research and interviews conducted […]

Meaningful technology: putting participants at the heart of research

Engaging participants in biomedical research remains a huge challenge. Even with a coherent cross-channel communications strategy it remains hard to meaningfully engage with participants as individuals in a way that maintains their interest over time. For the last year, Genomics England and Sano Genetics have been working together to better understand how research participants can […]

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