57 / 100

Medics 4 Rare Diseases Red Flag Survey

Jul 23, 2018Community, Guest posts, Research

Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey.

Cambridge Rare Disease Network - Medics 4 Rare Diseases Red Flag Survey 1

The purpose of the survey is to find out what different rare diseases have in common during the time before diagnosis, a period often called ‘the diagnostic odyssey’.

This is a piece of research that M4RD have wanted to do for many years as they have attended conferences listening to similar stories from patients and families irrespective of their specific rare disease. The final survey is the culmination of many hours of discussion and design.

The survey opens on Monday 23rd July and closes at the end of August 2018.

Please get involved and share your views so we can all support Medics4RD in driving change within the medical profession in terms of rare disease diagnosis. It is an online survey that takes 10 minutes to complete and can be accessed via this link: http://bit.ly/M4RDredflags.

If you need to access the survey in any other format or have any issues don’t hesitate to contact info@m4rd.org.

 

Cambridge Rare Disease Network - Medics 4 Rare Diseases Red Flag Survey 2
WP Feedback

Dive straight into the feedback!
Login below and you can start commenting using your own user instantly

CRDN sign up to newsletter

Sign up to our monthly newsletter packed with news & events. Join our thriving rare disease community.

 

You have Successfully Subscribed!