THE CHALLENGE | A Premium Mapped Virtual Challenge

Virtual

escription: Join The Challenge – a virtual mapped mission from Melbourne to Sydney along the golden south west Australian coastline with access to Google Street View along the entire route! Total […]

€25

Drug Repurposing for Rare Diseases 2021

Online

Drug Repurposing for Rare Diseases 2021 15th – 16th June 2021 Online via Swapcard Findacure’s Drug Repurposing for Rare Diseases Conference is back for an eighth year, and this time, it’s […]

Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers […]

International TSC Research Conference 2021: A Vision for the Future

Online

Welcome to the International TSC Research Conference 2021: A Vision for the Future. Proudly organised by the Tuberous Sclerosis Association (TSA-UK). The International TSC Research Conference is held annually to bring together academics, […]

£129

In Conversation With – Nicola Miller & Rebecca Stewart

Facebook Live

In Conversation With' returns on Wednesday with another double act! This time, we'll be joined by Founders of RARE Revolution and the RARE Youth Magazine: Nicola Miller & Rebecca Stewart. […]

Brain Research Conference – NMHRI & TSA 2021

Online

Brain Research Conference - NMHRI & TSA For those with an interest in neuroscience and CACNA1C. This event is aimed at families with TS or CACNA1C gene variants, scientists, researchers […]

Free

Disabled Living Collective!

Online

Exciting news from the teams at Disabled Living! Venue to Virtual - with a difference Monday 28th June to Friday 2nd July 2021  We have some very exciting news - […]

ON THE ROAD TO COVID-19 RECOVERY & DELIVERY OF THE SDGS

Online

Invitation Side-Event at the UN High-Level Political Forum  EURORDIS cordially invites you to a High Level Side-Event at the United Nations High-Level Political Forum on Sustainable Development (HLPF).  Organised on the margins of the […]

Measuring what matters: supporting patients to engage in HTA

online Online, Online, NY

Measuring what matters: supporting patients to engage in HTA Josie Godfrey and Lindsay Weaver from Realise Advocacy will talk about why patient involvement in Health Technology Assessment (HTA) is essential […]

Free
Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers […]

Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers […]

Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers […]

Wolfram Syndrome Virtual Conference Day 1

online Online, Online, NY

Wolfram Syndrome Virtual Conference Day 1 It’s time to register your place for the International Virtual Conference Part 1 Saturday 18th September 2021 (BST) PROGRAMME 1.00– 1.50pm Modelling neuro-retinal symptoms […]

Wolfram Syndrome Virtual Conference Day 2

online Online, Online, NY

It’s time to register your place for the International Virtual Conference Part 2 Saturday 25th September 2021 PROGRAMME Afternoon Sessions (BST) 1.15 – 2.00 pm Treat Wolfram Trial Update Prof […]

Wolfram Syndrome Global Awareness Day

online Online, Online, NY

Wolfram Syndrome Global Awareness Day The inaugural Global Awareness Day for Wolfram Syndrome. Wolfram Syndrome UK are working in collaboration with 6 other global WS organisations to raise awareness of […]

Real World Data Through a Patient’s Lens

virtual

Real World Data Through a Patient’s Lens A conversation on Real World Data (RWD) and case reports from clinicians and researchers. This patient education event will focus on what RWD […]

HEME BIOSYNTHESIS AND THE PORPHYRIAS 2021

Virtual

HEME BIOSYNTHESIS AND THE PORPHYRIAS 2021 It’s our pleasure to invite you to an important symposium on “Heme Biosynthesis and the Porphyrias 2021: Consensus Diagnoses, Variant Disorders, New & Emerging […]

£375