Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]

17th Annual Anglonordic Life Science Conference

County Hall Belvedere RoadLondon,

17th Annual Anglonordic Life Science Conference Anglonordic is the only life science conference in the UK that is exclusively for European investors and R&D companies from the Nordics and the UK to connect with each other. With an established format of panel discussions, parallel technology and biotech investment rooms, plus 1:1 meetings, this one and […]

£450

Drug Repurposing for Rare Diseases 2021

Online

Drug Repurposing for Rare Diseases 2021 15th – 16th June 2021 Online via Swapcard Findacure’s Drug Repurposing for Rare Diseases Conference is back for an eighth year, and this time, it’s gone virtual!   Our annual repurposing conference highlights the best examples of repurposing in the field of rare diseases. An event distinctive in its collaborative and […]

Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]

International TSC Research Conference 2021: A Vision for the Future

Online

Welcome to the International TSC Research Conference 2021: A Vision for the Future. Proudly organised by the Tuberous Sclerosis Association (TSA-UK). The International TSC Research Conference is held annually to bring together academics, healthcare professionals, industry, patients and patient representatives from around the world to share their knowledge and experience and to learn about new and exciting developments […]

£129

In Conversation With – Nicola Miller & Rebecca Stewart

Facebook Live

In Conversation With' returns on Wednesday with another double act! This time, we'll be joined by Founders of RARE Revolution and the RARE Youth Magazine: Nicola Miller & Rebecca Stewart. The two of them will be joining us to talk about the origins of RARE Revolution, and the challenges they've faced along the way. This […]

Brain Research Conference – NMHRI & TSA 2021

Online

Brain Research Conference - NMHRI & TSA For those with an interest in neuroscience and CACNA1C. This event is aimed at families with TS or CACNA1C gene variants, scientists, researchers and clinicians. Please join us for this year's Brain Research Conference hosted by the NMHRI at Cardiff University and Timothy Syndrome Alliance https://timothysyndrome.org/ About this […]

Free

Disabled Living Collective!

Online

Exciting news from the teams at Disabled Living! Venue to Virtual - with a difference Monday 28th June to Friday 2nd July 2021  We have some very exciting news - Disabled Living's services, Equipz, Kidz to Adultz Events and Bladder & Bowel UK have joined forces to bring you -   The Disabled Living Collective! What […]

ON THE ROAD TO COVID-19 RECOVERY & DELIVERY OF THE SDGS

Online

Invitation Side-Event at the UN High-Level Political Forum  EURORDIS cordially invites you to a High Level Side-Event at the United Nations High-Level Political Forum on Sustainable Development (HLPF).  Organised on the margins of the HLPF, the event is co-hosted by Spain, Qatar and Brazil - the Core Group of Member States promoting the call for a UN Resolution on Addressing the Challenges […]

Measuring what matters: supporting patients to engage in HTA

online Online, Online, NY

Measuring what matters: supporting patients to engage in HTA Josie Godfrey and Lindsay Weaver from Realise Advocacy will talk about why patient involvement in Health Technology Assessment (HTA) is essential for good decision-making and how patients and patient organisations can be supported to ensure they maximise their impact through evidence based advocacy. Heidi Livingstone from […]

Free
Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]

Cell and gene data innovation and multi-stakeholder data transfer

webinar

Join C&GT delivery trailblazers BMS, Novartis and Salesforce for Reuters Events’ latest webinar, to discuss how the industry can effectively plan, capture and utilize RWE and RWD sharing across the value chain to optimize commercial strategy. When you join, you will learn how to: • Reimagine the technology: digitally transform existing data integration models for […]

Free
Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]

Getting involved in health research at NIHR Cambridge BRC

Online

Getting involved in health research at NIHR Cambridge BRC How the public can influence health research – free information session Patients and the public play a vital role in how research is carried out at the Cambridge Biomedical Campus. Their voice can shape new research priorities and improve how we conduct our studies. Members of […]

Free
Recurring

#PitHour

Twitter

PitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]

Wolfram Syndrome Virtual Conference Day 1

online Online, Online, NY

Wolfram Syndrome Virtual Conference Day 1 It’s time to register your place for the International Virtual Conference Part 1 Saturday 18th September 2021 (BST) PROGRAMME 1.00– 1.50pm Modelling neuro-retinal symptoms of Wolfram Syndrome in patient-derived stem cells and mice Prof Vania Broccoli CNR - National Research Council Institute of Neuroscience, Milan Register in advance for […]

Wolfram Syndrome Virtual Conference Day 2

online Online, Online, NY

It’s time to register your place for the International Virtual Conference Part 2 Saturday 25th September 2021 PROGRAMME Afternoon Sessions (BST) 1.15 – 2.00 pm Treat Wolfram Trial Update Prof Timothy Barrett, Dr Renuka Dias and Dr Ben Wright from Birmingham Children’s Hospital and Queen Elizabeth Hospital, Birmingham. Register in advance for this webinar: https://us02web.zoom.us/webinar/register/WN_puLmMsSnQwKEeH9CdIIMCw […]

Wolfram Syndrome Global Awareness Day

online Online, Online, NY

Wolfram Syndrome Global Awareness Day The inaugural Global Awareness Day for Wolfram Syndrome. Wolfram Syndrome UK are working in collaboration with 6 other global WS organisations to raise awareness of Wolfram Syndrome amongst medical professionals and the public. They will disseminate information for Ophthalmologists, Endocrinologists and Diabetologists to the relevant institutions in a number of […]

Real World Data Through a Patient’s Lens

virtual

Real World Data Through a Patient’s Lens A conversation on Real World Data (RWD) and case reports from clinicians and researchers. This patient education event will focus on what RWD means, the importance of RWD in clinical decision making, RWD and off-label usage by doctors and patients, the role patients and caregivers can play in […]