THE CHALLENGE | A Premium Mapped Virtual Challenge
Virtualescription: Join The Challenge – a virtual mapped mission from Melbourne to Sydney along the golden south west Australian coastline with access to Google Street View along the entire route! Total Distance: 1,250 kilometres (777 miles) Activity: Cycle, Run, Walk, Steps, Wheelchair & more Open to: Solo entrants or Teams of 2-10) Start Date: 15th February 2021 Finish Date: 1st September […]
In Conversation With – Nicola Miller & Rebecca Stewart
Facebook LiveIn Conversation With' returns on Wednesday with another double act! This time, we'll be joined by Founders of RARE Revolution and the RARE Youth Magazine: Nicola Miller & Rebecca Stewart. The two of them will be joining us to talk about the origins of RARE Revolution, and the challenges they've faced along the way. This […]
Brain Research Conference – NMHRI & TSA 2021
OnlineBrain Research Conference - NMHRI & TSA For those with an interest in neuroscience and CACNA1C. This event is aimed at families with TS or CACNA1C gene variants, scientists, researchers and clinicians. Please join us for this year's Brain Research Conference hosted by the NMHRI at Cardiff University and Timothy Syndrome Alliance https://timothysyndrome.org/ About this […]
Disabled Living Collective!
OnlineExciting news from the teams at Disabled Living! Venue to Virtual - with a difference Monday 28th June to Friday 2nd July 2021 We have some very exciting news - Disabled Living's services, Equipz, Kidz to Adultz Events and Bladder & Bowel UK have joined forces to bring you - The Disabled Living Collective! What […]
Measuring what matters: supporting patients to engage in HTA
online Online, OnlineMeasuring what matters: supporting patients to engage in HTA Josie Godfrey and Lindsay Weaver from Realise Advocacy will talk about why patient involvement in Health Technology Assessment (HTA) is essential for good decision-making and how patients and patient organisations can be supported to ensure they maximise their impact through evidence based advocacy. Heidi Livingstone from […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
BHD Symposium 2021
VirtualBHD Symposium 2021 The Myrovlytis Trust is delighted to announce the relaunch of our annual Birt-Hogg-Dubé Symposium, bringing together patients, researchers and clinicians worldwide to discuss the latest developments in the BHD world.
BHD Symposium 2021
VirtualBHD Symposium 2021 The Myrovlytis Trust is delighted to announce the relaunch of our annual Birt-Hogg-Dubé Symposium, bringing together patients, researchers and clinicians worldwide to discuss the latest developments in the BHD world.
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
