Wolfram Syndrome Virtual Conference Day 2
online Online, OnlineIt’s time to register your place for the International Virtual Conference Part 2 Saturday 25th September 2021 PROGRAMME Afternoon Sessions (BST) 1.15 – 2.00 pm Treat Wolfram Trial Update Prof Timothy Barrett, Dr Renuka Dias and Dr Ben Wright from Birmingham Children’s Hospital and Queen Elizabeth Hospital, Birmingham. Register in advance for this webinar: https://us02web.zoom.us/webinar/register/WN_puLmMsSnQwKEeH9CdIIMCw […]
Wolfram Syndrome Global Awareness Day
online Online, OnlineWolfram Syndrome Global Awareness Day The inaugural Global Awareness Day for Wolfram Syndrome. Wolfram Syndrome UK are working in collaboration with 6 other global WS organisations to raise awareness of Wolfram Syndrome amongst medical professionals and the public. They will disseminate information for Ophthalmologists, Endocrinologists and Diabetologists to the relevant institutions in a number of […]
RAREsummit21 – Vibrant > Vital > Virtual
About this event CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain. […]
Real World Data Through a Patient’s Lens
virtualReal World Data Through a Patient’s Lens A conversation on Real World Data (RWD) and case reports from clinicians and researchers. This patient education event will focus on what RWD means, the importance of RWD in clinical decision making, RWD and off-label usage by doctors and patients, the role patients and caregivers can play in […]
HEME BIOSYNTHESIS AND THE PORPHYRIAS 2021
VirtualHEME BIOSYNTHESIS AND THE PORPHYRIAS 2021 It’s our pleasure to invite you to an important symposium on “Heme Biosynthesis and the Porphyrias 2021: Consensus Diagnoses, Variant Disorders, New & Emerging Therapies”, to be held October 15-17, 2021 at the Hyatt Regency Schaumburg near the Chicago O’Hare Airport. This 2.5-day educational symposium will feature international and […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
BHD Symposium 2021
VirtualBHD Symposium 2021 The Myrovlytis Trust is delighted to announce the relaunch of our annual Birt-Hogg-Dubé Symposium, bringing together patients, researchers and clinicians worldwide to discuss the latest developments in the BHD world.
BHD Symposium 2021
VirtualBHD Symposium 2021 The Myrovlytis Trust is delighted to announce the relaunch of our annual Birt-Hogg-Dubé Symposium, bringing together patients, researchers and clinicians worldwide to discuss the latest developments in the BHD world.
Diversity of Clinical Trial Researchers and Patients
virtualDiversity of Clinical Trial Researchers and Patients A dialogue on the dual opportunities of clinical trial diversity to impact health disparities and/or improve minority leadership in scientific research. Topics include the importance of diversity in finding treatments for unsolved diseases, health disparities and the role of repurposed therapies in addressing them; community organizations’ role in […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]
International Conference on Neuroscience and Brain Disorders
International Conference on Neuroscience and Brain Disorders December 02-04, 2021 Rome, Italy Central Nervous System Neural Engineering Child Neurology Seizure Disorders Addiction & Alcoholism Sleep Disorders Stem Cells and Neuroregeneration Dementia & Mental Health Cognitive & Molecular neuroscience Neuroendocrinology CNS and Neurological Disorders Alzheimer’s Disease and Memory Disorders Amnesia Neuro Psychiatry and Behavioral Neuroscience Huntington […]
#PitHour
TwitterPitHour with the Pituitary Foundation Join us on Twitter (@Pituitary_org) to discuss some of the most important issues facing pituitary patients. We hope to be joined joined by patients, carers and medical professionals from across the country (and globe) to start important conversations. #PitHour is at 7-8pm on the third Wednesday of every month, each […]