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Edinburgh Rare Disease Workshop: Co-ordination of Care 2020

March 26, 2020 @ 9:30 am - 1:00 pm

Co-ordination of care for rare disease workshop Edinburgh
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About this Event

We look forward to welcoming you at the 2020 Rare Disease Workshop – Raising Awareness and Coordination of Care

Care Co-ordination for Rare Disease Workshop Aims

  • To look at the achievements to date against the 3 priority areas – The role of research, raising awareness of rare diseases amongst healthcare professionals and co-ordination of care.
  • To help prepare a set of realistic short/medium term deliverables in relation to raising awareness of rare diseases amongst healthcare professionals and co-ordination of care.
  • To help gain a set of long term deliverables which will contribute to the development of the Rare Disease Strategy for Scotland Post 2020


1. Can I bring someone along with me?

Provided that person has registered, yes. Unfortunately, we will not be able to admit anyone that has not registered in advance.

2. Can I claim expenses from you for the event?

No. Any expenses would have to be claimed through your own organisation.

3. Can I park at the Venue?

No. There is paid car parking nearby if required: https://www.edmosque.org/contacts/

4. If you have any dietary requirements?

You can e-mail: Thomas.Cranston@gov.scot

5. Where can I contact the organiser with any questions?

You can e-mail: Thomas.Cranston@gov.scot


Personal Data – Key Facts

The Scottish Government will use the data provided when registering to plan for attendance at this event.

Contact details will be used to share relevant information with attendees in advance of the event, as well as to request feedback afterwards and will be retained by the UK Rare Disease Policy Board members so that you can be notified of future similar events. Please let us know if you do not wish your contact details to be retained.

You can read more about the Scottish Government’s policy on personal data here

For tickets head to Eventbrite 



City of Edinburgh Methodist Church
25 Nicolson Square
Edinburgh, Scotland EH8 9BX United Kingdom
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