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Wolfram Syndrome Global Awareness Day

October 1, 2021

Cambridge Rare Disease Network - Wolfram Syndrome Global Awareness Day 1
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Wolfram Syndrome Global Awareness Day

The inaugural Global Awareness Day for Wolfram Syndrome.

Wolfram Syndrome UK are working in collaboration with 6 other global WS organisations to raise awareness of Wolfram Syndrome amongst medical professionals and the public. They will disseminate information for Ophthalmologists, Endocrinologists and Diabetologists to the relevant institutions in a number of countries as well as globally. In each country they will try to raise public awareness as well as fundraise for their organisation.

ON the day they will be attempting a sort of relay race using social media posts starting at 10.00am in New Zealand and travelling across the world with their community posting at 10.00am through each time zone and getting friends, family and contacts sharing, liking etc to spread the awareness.

WSUK have created a Facebook fundraiser page for the day https://www.facebook.com/donate/174991438091775/


October 1, 2021
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Wolfram Syndrome UK
01903 211358
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United Kingdom
London, NC E16 2DQ United States
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