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Research and Rare Conditions Conference

March 9, 2020 @ 9:00 am - 4:30 pm

Cambridge Rare Disease Network - Research and Rare Conditions Conference 1
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Genetic Alliance UK and NHS Research Scotland – Research and Rare Conditions Conference

Genetic Alliance UK, with the support of NHS Research Scotland, are delighted to announce that registration for the Research and Rare Conditions Conference is now open.

The conference, to be held at the Royal College of Physicians in Edinburgh on Monday 9 March 2020, will be an opportunity for those interested in research and rare conditions to hear from a range of expert speakers and participate in facilitated discussions to inform the future of rare disease research policy.

We are delighted that Professor David Crossman, Chief Scientist for Health in Scotland, will attend to provide the keynote address.

There will four themed sessions on the following topics:

– Registries and the value of data collection

– Reducing the diagnostic odyssey

– Involving patients in clinical research

– Innovation and treatment

In addition, we are pleased offer ‘Soapbox Sessions’ to attendees – these are three minute speaking slots for those wishing to share their experiences of research or their priorities for research policy. If you would be interested in providing a soapbox session, please contact natalie@geneticalliance.org.uk


Royal College of Physicians of Edinburgh
11 Queen Street
Edinburgh, Edinburgh EH2 1JQ United Kingdom
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