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Rare Film Festival 2020
February 10 @ 6:30 pm - 10:00 pm
Awards Ceremony – Rare Film Festival 2020
Rare Disease UK is hosting the UK’s first ever film festival fully dedicated to raising awareness of rare diseases. We invited charities, companies, independent film-makers, students and individuals to submit short films around the theme of rare disease. Our judging panel will choose the most innovative, inspiring and powerful films and announce the winners at this glamorous event in Regent Street Cinema in Central London.
What’s happening at Rare Film Festival?
This is an exclusive event in celebration of Rare Disease 2020. We have invited representatives of all major stakeholders of rare disease community. You can expect a lot of charities, rare disease patients and patient advocates, researchers, healthcare professionals, film-making professionals, pharma and biotech companies, healthcare communication agencies, film production professionals and individual supporters. The doors will open at 18:30, giving everyone plenty of time to network and enjoy a welcome drink and some canapes. The Awards Ceremony will start at 19:30.
Who is taking part?
- – Aspiring Filmmakers – anyone interested in film and film production – students, film amateurs, independent professionals.
- – Patient Organisations – charities supporting the cause of a rare condition(s).
- – Voluntary Organisations – non registered, small patient groups supporting the cause of a rare condition(s).
- – Digital and PR agencies that have or wish to create a film in collaboration with a rare disease charity.
- – Companies that have, or wish to create a film in collaboration with a rare disease charity.
Did you know?
Rare Disease Day is a global event that aims to raise awareness of rare diseases. It is officially held on the last day of February each year, and recognised in over 90 countries worldwide.
Individually rare diseases are uncommon but collectively they affect many people. In the UK it is estimated that 3.5 million people will be affected by a rare disease at some point in their lives, that is equivalent to 1 in 17.
There are between 6,000 and 8,000 known rare diseases and around five new rare diseases are described in medical literature each week.
Unfortunately, the reality of rare disease patients is challenging, many experience delays in getting an accurate diagnosis, receive poorly coordinated care and face difficulties accessing appropriate information.
If you wish to learn more about the Rare Disease Day and read some of the patient stories, visit our dedicated website by clicking here.