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Rare Disease Day Cambridge Lecture: CRDN & NIHR Bioresource
February 28, 2017 @ 6:00 pm - 9:00 pm
NIHR Rare Disease Day Cambridge Lecture
Tues 28 February 2017 from 6pm to 9pm
at Cambridge Judge Business School
Jointly hosted by
NIHR Rare Diseases Translational Research Collaboration
Cambridge Rare Disease Network
The evening highlights Rare Disease Day and Rare Disease Research
Are you interested in Rare Disease research?
If the answer is yes then this evening lecture and networking opportunity will be of interest to you.
It will Include:
- Updates about rare disease research
- Hearing from speakers directly affected by rare disease
- An opportunity to talk with researchers and professionals
- To connect with other patients and carers
- Drinks and nibbles after the speakers
With representatives from Rare Disease Community, Patients, charities and researchers the evening offers fantastic opportunities for networking and information sharing.
About Rare Disease Day
2017 marks the 10th year that the internationally rare disease community will celebrate Rare Disease Day.
On 28 February 2017, people living with or affected by a rare disease, patient organisations, politicians, carers, medical professionals, researchers and industry will come together in solidarity to raise awareness of rare diseases.
What are my transport/parking options for getting to and from the event?
Cambridge Judge Business School (the old Addenbrookes) is located directly opposite the Fitzwilliam Museum on Trumpington Street. There is metered parking along Trumpington Street, or you may prefer to park at the Grand Arcade shopping centre’s car park, which is just five minutes’ walk from the School.
Cambridge Judge Business School is a ten-minute taxi ride from the rail station and taxis can be found outside the station entrance. Cambridge city centre bus station on Drummer Street, is less than 10 minutes’ walk from the School. Bicycle racks can be found at the front of the school.
Where can I contact the organiser with any questions?
Please contact Georgina Norris via email: firstname.lastname@example.org alternatively Tel: 01223 254608
Student at the University of Northampton. Kathryn has Scimitar Syndrome which affects approximately 1 person in 100,000
Professor Patrick Chinnery
Co-Chair for NIHR Rare Diseases Translational Research Collaboration. Clinical Neurologist & Wellcome Trust Senior Fellow
Endocrine Project Manager for ALD LIFE. Karen is a carrier of ALD and parent to two affected sons, one who died aged 8.
Professor Stephen Jackson
Cambridge University Professor of Biology, Head of Cancer Research UK Laboratories at Gurdon Institute
Dr Nick Sireau
CEO of AKU Society, has two sons affected by Black Bone Disease. Chairman of Findacure & member of Eurordis board of Directors