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Rare disease community response to COVID-19: Patient group and industry perspectives
April 22 @ 4:00 pm - 5:00 pm
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There are many unprecedented challenges facing the rare disease community due to COVID-19 — maintaining patient access to rare disease therapies, managing delays in clinical trials, and ensuring patient support are all top of mind. This webinar will feature rare disease leaders who will discuss how they are navigating the obstacles posed by the pandemic and answer questions such as: What are orphan drug developers doing to ensure continued access to therapies for rare disease patients? How are patients responding to personal challenges posed by COVID-19? What is the impact and future outlook of delayed clinical trials? Moderator: Sophie Schmitz, Managing Partner, Partners4Access Annie Kennedy, Chief of Policy and Advocacy, EveryLife Foundation for Rare Diseases Vikram Karnani, Executive Vice President, Chief Commercial Officer, Horizon Lynsey Chediak, Patient, Project Lead, Precision Medicine, World Economic Forum This webinar is the first of several produced by the 10th annual World Orphan Drug Congress USA, now taking place on August 24th-26th in Washington, DC. Click here to learn more: https://www.terrapinn.com/conference/world-orphan-drug-congress-usa/index.stm