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Meaningful technology: putting participants at the heart of research

April 20

Cambridge Rare Disease Network - Meaningful technology: putting participants at the heart of research 1
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Engaging participants in biomedical research remains a huge challenge. Even with a coherent cross-channel communications strategy it remains hard to meaningfully engage with participants as individuals in a way that maintains their interest over time. For the last year, Genomics England and Sano Genetics have been working together to better understand how research participants can be placed at the heart of research by using a dedicated online platform. Join Patrick Short, CEO of Sano Genetics, Rakhi Rajani, Chief Digital Officer of Genomics England, and Jillian Hastings Ward, Chair of the Participant Panel for Genomics England, for a panel discussion on what taking a participant-centric approach can mean for organisations supporting research.

Our host is Paul Wicks, Ph.D., a neuropsychologist and independent consultant who helps life sciences companies generate evidence, revenue, and awareness. Paul has dedicated much of his career to patient-centric research and building patient communities, particularly in rare diseases such as ALS/MND, IPF, and NMO. Paul has spent 19 years in the digital health and online community space, 13 of which were spent as a senior leader at PatientsLikeMe.

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Date:
April 20
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