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Medicine and Me: Living with pulmonary fibrosis 13.3.20
March 13, 2020 @ 10:00 am - 3:30 pm
Medicine and Me: Living with Pulmonary Fibrosis
- Fri 13 Mar 2020 from 10:00am to 3:30pm
- Royal Society of Medicine
Jointly organised by Medicine and Me at the Royal Society of Medicine and Action on Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease.
Learn more about current approaches to diagnosis, treatment and management of IPF from the perspective of patients, their carers and clinicians, as well as gaining an insight into the psychological and emotional wellbeing of those living with IPF. We’ll also explore the cutting edge research into improving outcomes and palliation, as we consider areas of inquiry likely to deliver step changes in treatments.
What will you learn at ‘Living with pulmonary fibrosis’?
By attending this meeting, you will have the opportunity to:
- Understand the most effective approaches to the diagnosis of IPF and the contribution of high-resolution imaging
- Know about the pharmacology and use of current anti-fibrotic drugs and the underlying biology that may lead to new approaches to treatments
- Understand the development of biomarkers, breath markers and other approaches to determining who is likely to respond to treatments
- Know from patients’ perspectives about the importance of palliative options and support for symptoms including breathlessness and mental health concerns
- Consider inequalities in access to management options, for example, care by specialist nurses
- Consider likely avenues for ”step changes” in treating IPF
About Medicine and Me
Medicine and Me meetings aim to provide an outline of current best practice and future updates of important conditions and to give direct voice to patients and their carers and enable them to discuss their concerns and reflections on the impact of diagnosis, investigation and management. Physicians and surgeons and indeed all healthcare professionals continue to learn from and be inspired to greater efforts to improve care by hearing directly from patients.
Tickets
Early Bird pricing available until 13 February 2020. To book click here
Member
| RSM Fellow | RSM Associate | RSM Retired Fellow | RSM Student | RSM Trainee |
|---|---|---|---|---|
| £36.00 | £18.00 | £15.00 | £0.00 | £0.00 |
Agenda
Registration, tea and coffee
Welcome and introduction
Dr Fiona Moss, Dean, Royal Society of Medicine
Introduction to the day
Steve Jones, Chair of Trustees, Action for Pulmonary Fibrosis
Living with Idiopathic Pulmonary Fibrosis – patients’ perspectives
Diagnostic journeys – Howard Almond, Exeter Pulmonary Fibrosis Group and APF trustee
Anti-fibrotic drugs and daily life – Ron Fish, Papworth Hospital PF Support Group
Idiopathic Pulmonary Fibrosis: what is it, who gets it and why?
Dr Simon Hart, PhD FRCPE, Reader in Respiratory Medicine, Hull York Medical School
Speeding up the diagnostic journey: Step changes in diagnosis
Dr Simon Walsh MD FRCR Consultant Radiologist, National Heart and Lung Institute, Imperial College London
Dr Simon Hart, PhD FRCPE, Reader in Respiratory Medicine, Hull York Medical School
Panel discussion
Patients, Dr Simon Hart and Dr Simon Walsh
Lunch
Current and future treatments for Idiopathic Pulmonary Fibrosis
Dr Helen Parfrey PhD, FRCP Consultant Physician, Cambridge Interstitial Lung Diseases Unit
Discussion with Dr Helen Parfrey
Life with Pulmonary fibrosis: What helps?
Ms Maxine Flewett, Papworth Hospital Pulmonary Fibrosis Support Group, carer
Dr Melissa Wickremasinghe, PhD MRCP, Consultant Respiratory Physician
Dr Anne-Marie Russell PhD RN, Senior Clinical Research Fellow, Honorary Idiopathic Pulmonary Fibrosis Nurse Consultant, Imperial College Healthcare NHS Trust
Panel discussion
Ms Maxine Flewett, Dr Anne-Marie Russell, Dr Melissa Wickremasinghe
Panel discussion: Looking forwards together: Step changes in treatments, what are the priorities?
Dr Helen Parfrey, Dr Simon Hart, Dr Melissa Wickremasinghe, Dr Helen Parfrey, Dr Anne-Marie Russell, patients
Closing comments
Steve Jones
Close of meeting, tea and coffee
Join in the conversation online
Follow us on Twitter: @RoySocMed
We would like to thank our sponsor(s):
Galecto Biotech AB
Please note that none of the companies listed have had any influence or involvement over the agenda, content or organisation of this meeting.
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