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Live podcast with Keith McArthur, Rare Disease Champion
July 17, 2020 @ 4:00 pm - 5:00 pmFree
Keith McArthur is one of the parents re-writing the rules for research in rare disease. Keith is CEO of the CureGRIN foundation, a non-profit backed by the Chan-Zuckerberg Initiative. Keith and his co-founder Denise Rehner believe that patients hold the power to accelerate research and drive progress, and that a cure for GRIN Disorders is possible.
Keith is also the host of the podcast Unlocking Bryson’s Brain, an award-winning podcast covering the Keith and Laura McArthur’s search for the key that could unlock their son Bryson’s brain. Over 8 episodes, the podcast covers, Bryson’s birth and diagnosis, gene editing technology like CRISPR, creating a mouse model of Bryson’s disease, and a ‘pilgrimage’ to Boston – the global epicentre of biotechnology and rare disease research.
In this live podcast, you will have a chance to ask Keith your questions about rare disease life, research, and the future of patient-powered research.