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Live podcast with Keith McArthur, Rare Disease Champion

July 17 @ 3:00 pm - 4:00 pm

Free
Cambridge Rare Disease Network - Live podcast with Keith McArthur, Rare Disease Champion 1
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Podcast Live

Keith McArthur is one of the parents re-writing the rules for research in rare disease. Keith is CEO of the CureGRIN foundation, a non-profit backed by the Chan-Zuckerberg Initiative. Keith and his co-founder Denise Rehner believe that patients hold the power to accelerate research and drive progress, and that a cure for GRIN Disorders is possible.

Keith is also the host of the podcast Unlocking Bryson’s Brain, an award-winning podcast covering the Keith and Laura McArthur’s search for the key that could unlock their son Bryson’s brain. Over 8 episodes, the podcast covers, Bryson’s birth and diagnosis, gene editing technology like CRISPR, creating a mouse model of Bryson’s disease, and a ‘pilgrimage’ to Boston – the global epicentre of biotechnology and rare disease research.

In this live podcast, you will have a chance to ask Keith your questions about rare disease life, research, and the future of patient-powered research.

Details

Date:
July 17
Time:
3:00 pm - 4:00 pm
Cost:
Free
Event Category:
Event Tags:
, , ,
Website:
https://zoom.us/webinar/register/1015946310582/WN_sC0VSsigQhecZ75loF5HSw

Organiser

Sano Genetics
Email:
contact@sanogenetics.com
Website:
sanogenetics.com

Venue

virtual
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