Loading Events

« All Events

  • This event has passed.

Live podcast with Keith McArthur, Rare Disease Champion

July 17, 2020 @ 4:00 pm - 5:00 pm

Cambridge Rare Disease Network - Live podcast with Keith McArthur, Rare Disease Champion 1
57 / 100

Podcast Live

Keith McArthur is one of the parents re-writing the rules for research in rare disease. Keith is CEO of the CureGRIN foundation, a non-profit backed by the Chan-Zuckerberg Initiative. Keith and his co-founder Denise Rehner believe that patients hold the power to accelerate research and drive progress, and that a cure for GRIN Disorders is possible.

Keith is also the host of the podcast Unlocking Bryson’s Brain, an award-winning podcast covering the Keith and Laura McArthur’s search for the key that could unlock their son Bryson’s brain. Over 8 episodes, the podcast covers, Bryson’s birth and diagnosis, gene editing technology like CRISPR, creating a mouse model of Bryson’s disease, and a ‘pilgrimage’ to Boston – the global epicentre of biotechnology and rare disease research.

In this live podcast, you will have a chance to ask Keith your questions about rare disease life, research, and the future of patient-powered research.


July 17, 2020
4:00 pm - 5:00 pm
Event Category:
Event Tags:
, , ,
View Event Website


Sano Genetics
View Organizer Website



Dive straight into the feedback!
Login below and you can start commenting using your own user instantly

CRDN sign up to newsletter

Sign up to our monthly newsletter packed with news & events. Join our thriving rare disease community.


You have Successfully Subscribed!