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Rare disease home nursing service debate
March 17, 2016 @ 6:00 pm - 9:00 pm
Is there a need for a rare disease home nursing service? Join our debate.
Join us on Thursday 17 March to share your views, ideas and solutions at an event chaired by Alastair Kent, Director of Genetic Alliance UK, and hosted by the Cambridge Rare Disease Network.
When: 6:00-9:00pm, Thursday 17th March
Where: Cambridge Judge Business School
About the event
Hiran Prag from the Cambridge Consulting Network will present the findings of his team’s report into the feasibility of a home nursing service, commissioned by CRDN.
Dr Larissa Kerecuk, Rare Disease Lead at Birmingham Children’s Hospital will also join us to share her knowledge and experience in this field. She will be accompanied by nurses she is working with from different organisations including their new nurses funded by Roald Dahl’s Marvellous Children’s Charity.
Also joining the panel is Helena Baker, Vice President of Nursing from the Medical Research Network http://www.themrn.co.uk
Following a discussion led by Alastair Kent OBE, you’ll have the chance to discuss these ideas further and network over a glass of wine or a soft drink.
Topics for discussion
To get you thinking, these are some of the themes we’ll be discussing:
* Rare disease and the need for specialist nursing
* Global nursing organisations
* Funding mechanisms of nursing organisations
* Rare disease in Cambridge, the UK and existing nursing services