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GNE Myopathy Patient Day: 25.7.20
July 24 - July 25Free
World Without GNE Myopathy Conference – 25 July 2020
World Without GNE Myopathy (WWGM)’s third edition of its annual conference that brings together patients, scientists and doctors in the GNE myopathy community. GNE myopathy is a rare and debilitating condition that causes progressive disability in young adults. There is no cure for this disease. It affects approximately 6 in 1 million people.
- This event will take place online making it accessible to all
- The conference will discuss WWGM’s scientific efforts towards bringing about a treatment for GNE myopathy.
- The second half of the conference will discuss patient-related issues and will have a patient sharing session.
To register please email firstname.lastname@example.org. To learn more about WWGM please visit www.gne-myopathy.org.