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Fighting Rare Diseases – The Science, Economics and the Patients.

October 23, 2020 @ 3:00 pm - 4:00 pm

Cambridge Rare Disease Network - Fighting Rare Diseases - The Science, Economics and the Patients. 1
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Fighting Rare Diseases – The Science, Economics and the Patients.

Join us on Friday 23rd October at 3.00 PM BST (10.00 AM EST/7.30 PM IST) for an intriguing o2h ChaiTime 2.8 chaired by Prashant Shah in which we will explore the latest science, the economics, and the role of patients in fighting rare diseases.

Rare disease by definition implies the patient numbers are very small, and therefore the return on investment has historically been challenging. Whilst advocacy groups have always been active in drawing attention to the plight of rare disease patients, a number of scientific & technology advances are changing the economics of advances in rare disease research. In addition, commercial organisations now appear more driven to make social investments that offer even more hope for those suffering from rare disease.


Prashant Shah, Executive Chairman @ o2h group


Tim Guilliams, CEO @ HealxTim – Guilliams is the CEO of Healx and is passionate about using big data & artificial intelligence to accelerate treatments for rare diseases. He obtained his PhD at the University of Cambridge in the field of Biophysics & Neuroscience.

Michael Binks, VP of Rare Disease research @ Pfizer – Michael Binks is a VP of Rare Disease research at Pfizer and is a scientifically focused drug discovery and early clinical development professional. He is a clinical rheumatologist with 20 years’ experience in immuno-inflammation & rare diseases involving small molecules, small protein, monoclonal antibody & AAV gene therapy modalities.

Nicola Miller, Editor in Chief @ Rare Revolution Magazine – Nicola Miller is the editor in Chief of Rare Revolution Magazine which is a voice and a platform for patients’ groups, industry, professionals, clinical & healthcare providers, and charities. She is also a trustee of the teddington trust which offers support & guidance to those affected by Xeroderma Pigmentosum.


o2h group
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