Update regarding EURORDIS events / COVID-19

EURORDIS-Rare Diseases Europe has been closely monitoring the international situation related to COVID-19 since the World Health Organisation declared the outbreak a Public Health Emergency of International concern. As organisers of the European Conference for Rare Diseases and Orphan Products, bringing together close to 1000 attendees from over 30 countries, we prioritize and care about the health and well-being of our attendees.

We currently do not intend to postpone or cancel the on-site event in Stockholm.

We continue to closely monitor this fast-evolving situation, referring to the following official information sources:

• World Health Organisation
• European Center for Disease Control
• Public Health Agency of Sweden and via our colleagues at Rare Diseases Sweden

We take this opportunity to provide this link to the WHO’s advice to the public of basic measures against the new coronavirus.

We thank you for your understanding and solidarity.

The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

The event draws together more than 800 participants from over 50 countries around the world. Leading, inspiring and engaging all stakeholders to take action, ECRD is where innovative solutions in the rare disease field are born. The Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators.

People living with a rare disease have the right to reach their highest potential of well-being; join us in ECRD 2020 Stockholm to take part in discussions to inform and build the future ecosystem for rare disease policies and services.