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COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community

January 15 @ 2:00 pm - 3:00 pm

Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 1
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The National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association, is pleased to host a special webinar with leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control (CDC) to discuss the COVID-19 vaccines with the rare disease community. FDA recently granted Emergency Use Authorization (EUA) for the Pfizer and Moderna COVID-19 vaccines.

Questions that will be addressed include:

  • What do the EUAs of these vaccines mean for the rare disease community?
  • When might other vaccines receive an EUA?
  • Are there special considerations for the rare disease community with respect to the COVID-19 vaccines?
  • What role does CDC play with respect to vaccines?

Additional questions from members of the rare community will be collected during the registration period and addressed in the live webinar.

This webinar is intended for patients, caregivers, advocates and the general public.

For those unable to join live, this webinar will be recorded and a viewing link sent to all registrants for on-demand viewing.

Date:
January 15, 2021

Time:
2:00 – 2:45pm ET

Speakers

Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 2

Dr. Stephen Hahn, Commissioner of Food and Drugs, FDA

Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 3

Dr. Peter Marks, Director, Center for Biologics Evaluation and Research, FDA

Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 4

Dr. Amanda Cohn, Chief Medical Officer, Office of Vaccine Policy, Preparedness and Global Health, Office of the Director, NCIRD, CDC

Opening Remarks

Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 5

Peter L. Saltonstall, President and Chief Executive Officer, NORD

Moderator

Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 6

Rachel Sher, JD, MPH, Vice President, Policy and Regulatory Affairs, NORD

Supporting Organizations

Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 7
Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 8
Cambridge Rare Disease Network - COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community 9

Details

Date:
January 15
Time:
2:00 pm - 3:00 pm
Event Category:
View Event Website

Venue

Online
Atarim

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