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24 Hours of Rare Even

February 28 @ 11:00 am - March 6 @ 5:00 pm

Cambridge Rare Disease Network - 24 Hours of Rare Even 1
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This Thursday 4th March at 11am EST, Naomi Litchfield, our Patient Advocacy Manager, will be hosting a panel at the 24 Hours of Rare Event, discussing What are the Ethical Preapproval Considerations for Rare Patient Groups?


She will be joined by Alison Bateman House (Ethical Professor NYU), Alexandra Hall (Director The Isaac Foundation) and Lucy and Mike Carrol (Ollie’s Army).


If any of you have chance to register for this FREE event and to show Naomi our support


February 28 @ 11:00 am
March 6 @ 5:00 pm
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