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A network that improves rare lives by

educating and inspiring you to take action

A network that improves rare lives by

educating and inspiring you to take action

A network that improves rare lives by

educating and inspiring you to take action

A network that improves rare lives by

educating and inspiring you to take action

A network that improves rare lives by

promoting collaboration

A network that improves rare lives by

promoting collaboration

A network that improves rare lives by

supporting families

Welcome to

Cambridge Rare Disease Network

Building a vibrant network to share knowledge and foster innovation that leads to better diagnosis, treatment and support for those living with a rare disease.

Networks

Networks

We help people to share their experiences

We are building a network of patients experts and leaders to improve the rare disease journey

Events

Events

We co-ordinate events that connect people

We curate cross-sector events that educate, stimulate debate and connect the right people collaborate and innovate

Resources

Resources

We provide a platform for the sharing of knowledge

We capture the voices of patients, their families and professionals working in the field and share their expertise with you

I wanted to thank you wholeheartedly for your brilliant partnership ethos, for organising hugely informative and engaging events to move the rare disease thinking and research forward, and creating the soil in which productive collaborative relationships can grow and flourish.

Grazina Berry • CEO, Aplastic Anaemia Trust

Unique Feet helped me to realise I don't have to be strong all of the time and that I can be human, it's alright. People are doing that face to seem strong but they're crumbling inside, and you realise you should reach out more.

Sue • member of Unique Feet community group

We're starting a new international scientific collaboration, which has evolved from discussions with companies following your CRDN RAREsummit last year and also involves another company following CRDN's invite for me to present at your Companies Forum - so your events have a HUGE amount of value to us!”

Allison Watson • Co-Founder, Ring 20 Research and Support

That was such an amazing event. So well organised. So much varied content. Really, really gripping, moving, exciting, inspiring, colourful, insightful ... and a million other thoughts and feelings throughout the day!

Anna Todd • Cambridge Children’s Hospital, RAREfest20

OUR CURRENT SPONSORS AND GRANT FUNDERS

COMPANIES & ORGANISATIONS SHARING THEIR SKILLS AND EXPERTISE PRO BONO

CRDN ARE PROUD TO BE IN PARTNERSHIP WITH...

CRDN are members of...

Cambridge Rare Disease Network - DRAFT - Jan 2021 3

Cambridge Rare Disease Network - DRAFT - Jan 2021 4

Cambridge Rare Disease Network - DRAFT - Jan 2021 6

OUR CURRENT SPONSORS AND GRANT FUNDERS

COMPANIES & ORGANISATIONS SHARING THEIR SKILLS AND EXPERTISE PRO BONO

CRDN ARE PROUD TO BE IN PARTNERSHIP WITH...

Cambridge Rare Disease Network - DRAFT - Jan 2021 7

CRDN are members of...

Cambridge Rare Disease Network - DRAFT - Jan 2021 8

OUR CURRENT SPONSORS AND GRANT FUNDERS

COMPANIES & ORGANISATIONS SHARING THEIR SKILLS AND EXPERTISE PRO BONO

CRDN ARE PROUD TO BE IN PARTNERSHIP WITH...

Cambridge Rare Disease Network - DRAFT - Jan 2021 7

CRDN are members of...

Cambridge Rare Disease Network - DRAFT - Jan 2021 8

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