Cambridge Rare Disease Network
Building a vibrant network to share knowledge and foster innovation that leads to better diagnosis, treatment and support for those living with a rare disease.
We help people to share their experiences
We are building a network of patients experts and leaders to improve the rare disease journey
We co-ordinate events that connect people
We curate cross-sector events that educate, stimulate debate and connect the right people collaborate and innovate
We provide a platform for the sharing of knowledge
We capture the voices of patients, their families and professionals working in the field and share their expertise with you