More about our trustees…

Sue Berry

Trustee and rare disease parent

Sue is a rare diease parent. Her daughter, Charlotte has Coffin Sirius Syndrome. Sue’s involvement with CamRARE includes speaking at the first RAREsummit and Charlotte was part of the Unique Feet dance group that performed at RAREfest18.

Sue and her family have lived in Willingham, Cambridge for over 20 years. Before that Sue lived in various parts of the UK and Far East. She has a degree in Colour Chemisty from Leeds University and worked in the textile indutry in the UK and Far East in Fabirc development and product development. Since 2001 Sue has worked for R&D at Molton Brown, working on packaging and product development, liaising between supplier, internal marketing teams and product development teams to develop new products and packaging. She has been a been a senior manager for the last 3 years and manages a team of 7.