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The CRDN team

More about our trustees…

Cambridge Rare Disease Network - CRDN | Team | Jo Balfour 1


Operations Manager

Jo is a founding member of CRDN and is a steering group member. Jo manages the overall operations of the charity including the events programme – RAREfest and RAREsummits, networking and educational events and is founder of the CRDN Unique Feet activity and community support group for children and their families living locally with rare conditions. Jo also supports the organisation of CRDN’s fundraising events.

Jo has 25 years experience in secondary teaching specialising in the field of special educational needs and children in care. An advisory teacher for Cambridgeshire’s Virtual School for Looked After Children for 13 years, she supported and challenged schools to provide the best care and be aspirational for marginalised and vulnerable young people with exceptional circumstances. She uses her prior experience as a SENCO and knowledge of SEND best practices and processes to support and advise families living locally with rare and undiagnosed conditions.

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