More about our team
Jo is a founding member and Managing Director of CamRARE. She is the creative director and master of perfect delivery behind CamRARE’s innovative, patient-centric events programme: RAREfest; RAREsummit; networking forums and educational events. Jo is the founder of CamRARE’s Unique Feet, a regional community support group for families affected by rare conditions. She gives strategic guidance and direction to the board and oversees the charity’s operations.
From a background in Special Educational Needs Management and as an advisor for Looked After Children in schools, Jo’s 25 year career in education has been one which has offered support and challenge to schools to provide the best care for young people living in exceptional circumstances to enable them to achieve aspirational goals in all aspects of their lives. She has continued this ethos of support and challenge in her work in rare diseases, aspiring to a world where all those affected by rare diseases receive exceptional diagnosis, care, treatment and support.