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New Scientist magazine: Rare disease campaign 2020
CamRARE were delighted to recently take part in a new Rare Disease campaign in the New Scientist Magazine published on 24 Sept. It is dedicated to raising awareness of rare diseases featuring exclusive content from key thought leaders (including CamRARE!). It...
Rare diseases: Making the unseen seen
Contrary to the isolation of lockdown, a vibrant and vital new collaboration emerged. Action for Rare Disease Empowerment (ARDEnt) is a cross-sector coalition of 30 UK-based experts involved in rare diseases. Concerned at the impact of COVID-19 on those affected by...
Dr. Giles Yeo “RAREfest20 is a unique event that drives better science”
Dr Giles Yeo works at the University of Cambridge, studying the genetics of obesity and the mechanisms of how our brain controls food intake. While interested in the general population, Giles says information garnered from studying rare disease patients with severe...
RAREsolutions 2020: Change by Design – STEM poster Competition for young people
Young STEM stars gear up for unique rare disease poster competition. We know there are plenty of budding young designers out there who are RARING to go for RAREsolutions 2020 – a STEM-themed poster competition with a difference!
Cancelled! Postponed! How do we roar for rare in the midst of a crisis?
At CamRARE our focus is on raising awareness and building networks to address the unmet needs of those affected by rare disease and the professionals that work with them. So how do organisations like ours maintain momentum during this extended period of lockdown? ...
Meet two of the beating hearts behind CamRARE
For third sector organisations, trustees are the beating hearts behind the scenes sharing ultimate responsibility for governance and direction. CamRARE is proud to have such a talented board at its helm and we caught up with two of our Trustees, Dr Sarah Leiter and...
The Hackathon Challenge: Two hours, 252 opinions, one priority
Too many cooks or the perfect recipe for success?and and ideaas and innovate Important to every CamRARE event is equity of voices and we pride ourselves in bringing together the different rare disease stakeholders on an equal standing. RARESummit 2019 was no...
Unique Feet: Life may not be the party we’d hoped for …
" Life may not be the party we'd hoped for, but while we’re here we should dance! "In 2015, in response to an invitation to take part in a charity ball, CamRARE took the step to create a small Cambridge based dance group for children with a range of rare conditions as...
Pharma Market Europe Award Winners for RAREfest18!
We are feeling very humbled and proud to have learnt today that Cambridge Rare Disease Network (CamRARE), with the support of med comms company Havas Life Medicom, were awarded winners of a ‘Judges Special Recognition Award’ at the Pharma Market Europe Awards...
RARESummit 2019 – Patients as partners
Wellcome Genome Campus hosts CamRARE RARESummit 19PASSION LED US HERE A crisp, bright September morning in the calming woodland setting of the Wellcome Genome Campus, Cambridge welcomed a chattering, excited collection of rare disease stakeholders from across the UK...
CamRARE Companies Forum 2020: Connecting the dots
Can CamRARE's Companies Forum 2020 connect the dots? Active stakeholders in the rare disease forum are all too aware of the complex landscape that surrounds the development of treatments for such conditions. From small patient populations and lack of real-world...
CamRARE host rare stage at Innovation Forum Health Horizons
CamRARE brings the RARE voice to major life sciences eventCambridge Biotech week, 25th - 28th of June 2019, was a brand new festival of events launched by the Global Innovation Forum designed to accelerate scientific ideas and support investment and growth for...