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Blog

Meet two of the beating hearts behind CRDN

Meet two of the beating hearts behind CRDN

For third sector organisations, trustees are the beating hearts behind the scenes sharing ultimate responsibility for governance and direction.  CRDN is proud to have such a talented board at its helm and  we caught up with two of our Trustees, Dr Sarah Leiter and...

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The Hackathon Challenge: Two hours, 252 opinions, one priority

The Hackathon Challenge: Two hours, 252 opinions, one priority

Too many cooks or the perfect recipe for success?and  and ideaas and innovate Important to every CRDN event is equity of voices and we pride ourselves in bringing together the different rare disease stakeholders on an equal standing. RARESummit 2019 was no different...

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Unique Feet: Life may not be the party we’d hoped for …

Unique Feet: Life may not be the party we’d hoped for …

but while we’re here we should dance!In 2015, in response to an invitation to take part in a charity ball, CRDN took the step to create a small Cambridge based dance group for children with a range of rare conditions as a place where they could express themselves....

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Pharma Market Europe Award Winners for RAREfest18!

Pharma Market Europe Award Winners for RAREfest18!

We are feeling very humbled and proud to have learnt today that Cambridge Rare Disease Network (CRDN), with the support of med comms company Havas Life Medicom, were awarded winners of a ‘Judges Special Recognition Award’ at the Pharma Market Europe Awards #PMEA2019...

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RARESummit 2019 – Patients as partners

RARESummit 2019 – Patients as partners

Wellcome Genome Campus hosts CRDN RARESummit 19PASSION LED US HERE A crisp, bright September morning in the calming woodland setting of the Wellcome Genome Campus, Cambridge welcomed a chattering, excited collection of rare disease stakeholders from across the UK and...

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CRDN Companies Forum 2020: Connecting the dots

CRDN Companies Forum 2020: Connecting the dots

Can CRDN's Companies Forum 2020 connect the dots? Active stakeholders in the rare disease forum are all too aware of the complex landscape that surrounds the development of treatments for such conditions. From small patient populations and lack of real-world evidence...

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CRDN host rare stage at Innovation Forum Health Horizons

CRDN host rare stage at Innovation Forum Health Horizons

CRDN brings the RARE voice to major life sciences eventCambridge Biotech week,  25th - 28th of June 2019,  was a brand new festival of events launched by the Global Innovation Forum designed to accelerate scientific ideas and support investment and growth for...

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2019 Rare Disease Day Cambridge Lecture

2019 Rare Disease Day Cambridge Lecture

Put over 150 passionate and motivated people together to talk about rare disease research and you can expect a fascinating evening.  That’s just what happened at the recent public evening, hosted by Cambridge Rare Disease Network in collaboration with the NIHR...

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RAREfest18 “heartwarming, uplifting, informative”

RAREfest18 “heartwarming, uplifting, informative”

Heartwarming, uplifting and informative, RAREfest18, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall over the weekend of November 30 & December 1.  RAREfest18 was the first of its kind; a rare disease inspired festival, created...

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