Blogs
Pharma Market Europe Award Winners for RAREfest18!
We are feeling very humbled and proud to have learnt today that Cambridge Rare Disease Network (CRDN), with the support of med comms company Havas Life Medicom, were awarded winners of a ‘Judges Special Recognition Award’ at the Pharma Market Europe Awards #PMEA2019...
RARESummit 2019 – Patients as partners
Wellcome Genome Campus hosts CRDN RARESummit 19PASSION LED US HERE A crisp, bright September morning in the calming woodland setting of the Wellcome Genome Campus, Cambridge welcomed a chattering, excited collection of rare disease stakeholders from across the UK and...
CRDN Companies Forum 2020: Connecting the dots
Can CRDN's Companies Forum 2020 connect the dots? Active stakeholders in the rare disease forum are all too aware of the complex landscape that surrounds the development of treatments for such conditions. From small patient populations and lack of real-world evidence...
CRDN host a rare stage at Health Horizons, Cambridge
CRDN brings the RARE voice to major life sciences eventCambridge Biotech week, 25th - 28th of June 2019, was a brand new festival of events launched by the Global Innovation Forum designed to accelerate scientific ideas and support investment and growth for...
CRDN teams up with Findacure to bring a sip of RARE to Pint of Science Festival
For the second consecutive year, CRDN is hosting 2 rare disease themed evenings for the Pint of Science Festival. We'll be based at the Panton Arms in Cambridge on 21 and 22 May inspiring the general public to be curious about the science and research taking place...
2019 Rare Disease Day Cambridge Lecture
Put over 150 passionate and motivated people together to talk about rare disease research and you can expect a fascinating evening. That’s just what happened at the recent public evening, hosted by Cambridge Rare Disease Network in collaboration with the NIHR...
RAREfest18 “heartwarming, uplifting, informative”
Heartwarming, uplifting and informative, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall over the weekend of November 30 & December 1. RAREfest was the first of its kind; a rare disease inspired festival, created and delivered...
Adam Pearson: Actor, TV presenter and campaigner speaking and exhibiting at #RAREFest18
Breaking news!! RAREfest18, which already had an amazing line-up, just got even better... Adam Pearson and Dagmar Bennett in conversation will talk us through their collaboration to create this wonderful sculpture of Adam. Their talk will be part of...
Pharmphorum magazine writes about #RAREfest18 and the inspiration behind it
This year, patients, clinicians, scientists and researchers will gather in Cambridge for a unique event: RAREfest18, a festival that aims to bring people together to improve the lives of those living with rare diseases.September 20, 2018 - article in...
Raising awareness about rare diseases
A family tragedy has prompted Kay Parkinson, founder of the rare disease charity Alstrom Syndrome UK, to create a conference encouraging joined-up thinking to help improve treatments, care and services for people with rare diseases. pharmaphorum spoke to her ahead of RAREfest18 to find out more.
Screenprinting for RAREfest & Unique Feet
The RAREfest logo comes to life... Our Graphic Designer has been to summer school, learning to screenprint at Cottenham Village college under the tuition of Ricki Outis - local textile and community artist. The set up was not commercial so everything was done in a way...
Healx raise funding to repurpose drugs for rare diseases
Congratulations to Cambridge start-up, Healx, co-founded by founder and trustee of CRDN, as it raises $10m to help repurpose drugs for rare diseases. Forbes and the Telegraph today report that the co-founders of Healx, Tim Guilliams - founder and trustee of...
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