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Cambridge Rare Disease Network - CRDN | News 1

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Pharma Market Europe Award Winners for RAREfest18!

Pharma Market Europe Award Winners for RAREfest18!

We are feeling very humbled and proud to have learnt today that Cambridge Rare Disease Network (CRDN), with the support of med comms company Havas Life Medicom, were awarded winners of a ‘Judges Special Recognition Award’ at the Pharma Market Europe Awards #PMEA2019...

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RARESummit 2019 – Patients as partners

RARESummit 2019 – Patients as partners

Wellcome Genome Campus hosts CRDN RARESummit 19PASSION LED US HERE A crisp, bright September morning in the calming woodland setting of the Wellcome Genome Campus, Cambridge welcomed a chattering, excited collection of rare disease stakeholders from across the UK and...

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CRDN Companies Forum 2020: Connecting the dots

CRDN Companies Forum 2020: Connecting the dots

Can CRDN's Companies Forum 2020 connect the dots? Active stakeholders in the rare disease forum are all too aware of the complex landscape that surrounds the development of treatments for such conditions. From small patient populations and lack of real-world evidence...

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CRDN host a rare stage at Health Horizons, Cambridge

CRDN host a rare stage at Health Horizons, Cambridge

CRDN brings the RARE voice to major life sciences eventCambridge Biotech week,  25th - 28th of June 2019,  was a brand new festival of events launched by the Global Innovation Forum designed to accelerate scientific ideas and support investment and growth for...

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2019 Rare Disease Day Cambridge Lecture

2019 Rare Disease Day Cambridge Lecture

Put over 150 passionate and motivated people together to talk about rare disease research and you can expect a fascinating evening.  That’s just what happened at the recent public evening, hosted by Cambridge Rare Disease Network in collaboration with the NIHR...

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RAREfest18 “heartwarming, uplifting, informative”

RAREfest18 “heartwarming, uplifting, informative”

Heartwarming, uplifting and informative, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall over the weekend of November 30 & December 1.  RAREfest was the first of its kind; a rare disease inspired festival, created and delivered...

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Raising awareness about rare diseases

Raising awareness about rare diseases

A family tragedy has prompted Kay Parkinson, founder of the rare disease charity Alstrom Syndrome UK, to create a conference encouraging joined-up thinking to help improve treatments, care and services for people with rare diseases. pharmaphorum spoke to her ahead of RAREfest18 to find out more.

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Screenprinting for RAREfest & Unique Feet

Screenprinting for RAREfest & Unique Feet

The RAREfest logo comes to life... Our Graphic Designer has been to summer school, learning to screenprint at Cottenham Village college under the tuition of Ricki Outis - local textile and community artist. The set up was not commercial so everything was done in a way...

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Healx raise funding to repurpose drugs for rare diseases

Healx raise funding to repurpose drugs for rare diseases

  Congratulations to Cambridge start-up, Healx, co-founded by founder and trustee of CRDN, as it raises $10m to help repurpose drugs for rare diseases. Forbes and the Telegraph today report that the co-founders of Healx, Tim Guilliams - founder and trustee of...

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If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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