CRDN’s Ops Manager, Jo Balfour, takes to the BBC Cambridgeshire radio waves on 29 Feb 2020 to raise awareness about International Rare Disease Day.
The 29th of February marks International Rare Disease Day, a day which aims to increase awareness of the impact of rare diseases on patients. To celebrate the day, local charity the Cambridge Rare Disease Network are hosting a special event to support local families called a Rare-I-Tea Party.
Cambridge Rare Disease Network’s RAREsummit19 held at the Wellcome Genome Campus makes it onto BBC Look East 6 o’clock news.
Cambridge Rare Disease Network taking part in the Health Horizons Future Healthcare Forum on the 26th and 27th of June, hosting a talks as part of the Cambrige Biotech Week.
Two Cambridge-based organisations, Cambridge Rare Disease Network and NIHR Bioresource, have joined together to raise awareness on Rare Disease Day.
Dr. Tim Guilliams, CRDN founder and trustee explains why RAREfest is so important, ahead of the launch.