CRDN’s Ops Manager, Jo Balfour, takes to the BBC Cambridgeshire radio waves on 29 Feb 2020 to raise awareness about International Rare Disease Day.
The 29th of February marks International Rare Disease Day, a day which aims to increase awareness of the impact of rare diseases on patients. To celebrate the day, local charity the Cambridge Rare Disease Network are hosting a special event to support local families called a Rare-I-Tea Party.
This is a story of how a rare disease can affect a family and how it can change their world for ever. It has inspired so many people because it is all about love, about parents never giving up and despite personal tragedy continuing to make a positive difference so others should not have to suffer the same experience.
Cambridge Rare Disease Network’s RAREsummit19 held at the Wellcome Genome Campus makes it onto BBC Look East 6 o’clock news.
To mark Rare Diseases Day on Thursday Leigh Chambers of Cambridge 105 Radio meets with Jo Balfour from the Cambridge Rare Diseases Network
Cambridge Rare Disease Network taking part in the Health Horizons Future Healthcare Forum on the 26th and 27th of June, hosting a talks as part of the Cambrige Biotech Week.