TV & Radio

Rare Disease Day Rare-i-Tea Party 2020

Rare Disease Day Rare-i-Tea Party 2020

The 29th of February marks International Rare Disease Day, a day which aims to increase awareness of the impact of rare diseases on patients. To celebrate the day, local charity the Cambridge Rare Disease Network are hosting a special event to support local families called a Rare-I-Tea Party.

Kay’s Story

Kay’s Story

This is a story of how a rare disease can affect a family and how it can change their world for ever. It has inspired so many people because it is all about love, about parents never giving up and despite personal tragedy continuing to make a positive difference so others should not have to suffer the same experience.

CRDN RAREsummit19 on BBC Look East

CRDN RAREsummit19 on BBC Look East

Cambridge Rare Disease Network’s RAREsummit19 held at the Wellcome Genome Campus makes it onto BBC Look East 6 o’clock news.

Leigh Chambers: Rare Disease Day

Leigh Chambers: Rare Disease Day

To mark Rare Diseases Day on Thursday Leigh Chambers of Cambridge 105 Radio meets with Jo Balfour from the Cambridge Rare Diseases Network

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