Sarah Lippett will be talking about her book "Puff of Smoke" at RAREfest20““Too often you’re seen as a number, rather than a human being. That needs to change.” – Sarah Lippett, Artist, Illustrator, Author and owner of two rare diseasesIf you are a young person on...
Treatments
RARESummit 2019 – Patients as partners
Wellcome Genome Campus hosts CRDN RARESummit 19PASSION LED US HERE A crisp, bright September morning in the calming woodland setting of the Wellcome Genome Campus, Cambridge welcomed a chattering, excited collection of rare disease stakeholders from across the UK and...
CRDN host rare stage at Innovation Forum Health Horizons
CRDN brings the RARE voice to major life sciences eventCambridge Biotech week, 25th - 28th of June 2019, was a brand new festival of events launched by the Global Innovation Forum designed to accelerate scientific ideas and support investment and growth for...
Pharmphorum magazine writes about #RAREfest18 and the inspiration behind it
This year, patients, clinicians, scientists and researchers will gather in Cambridge for a unique event: RAREfest18, a festival that aims to bring people together to improve the lives of those living with rare diseases.September 20, 2018 - article in...
Rare Disease Day 2018 – CRDN/NIHR lecture event
CRDN and NIHR Cambridge Bioresource team collaborate to host a Cambridge rare disease day lecture event #ShowYourRare Rare Disease Day takes place on the last day of February each year. The purpose is to raise awareness amongst the general public and decision-makers...
CRDN Inaugural Summit: Tackling the rare disease conundrum with passion, innovation and investment
A review of CRDN’s first summit by Paul Tunnah Pharmaphorum
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