Raising awareness

Meet two of the beating hearts behind CRDN

Meet two of the beating hearts behind CRDN

For third sector organisations, trustees are the beating hearts behind the scenes sharing ultimate responsibility for governance and direction.  CRDN is proud to have such a talented board at its helm and  we caught up with two of our Trustees, Dr Sarah Leiter and...

Pharma Market Europe Award Winners for RAREfest18!

Pharma Market Europe Award Winners for RAREfest18!

We are feeling very humbled and proud to have learnt today that Cambridge Rare Disease Network (CRDN), with the support of med comms company Havas Life Medicom, were awarded winners of a ‘Judges Special Recognition Award’ at the Pharma Market Europe Awards #PMEA2019...

RARESummit 2019 – Patients as partners

RARESummit 2019 – Patients as partners

Wellcome Genome Campus hosts CRDN RARESummit 19PASSION LED US HERE A crisp, bright September morning in the calming woodland setting of the Wellcome Genome Campus, Cambridge welcomed a chattering, excited collection of rare disease stakeholders from across the UK and...

2019 Rare Disease Day Cambridge Lecture

2019 Rare Disease Day Cambridge Lecture

Put over 150 passionate and motivated people together to talk about rare disease research and you can expect a fascinating evening.  That’s just what happened at the recent public evening, hosted by Cambridge Rare Disease Network in collaboration with the NIHR...

RAREfest18 “heartwarming, uplifting, informative”

RAREfest18 “heartwarming, uplifting, informative”

Heartwarming, uplifting and informative, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall over the weekend of November 30 & December 1.  RAREfest was the first of its kind; a rare disease inspired festival, created and delivered...

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