RAREfest proved a huge success – check our print edition for details, with more online content to follow – but was overshadowed by a shocking story of gene-editing abuse which took place in China very recently.
There was a lot of goodwill – even love – at the Wellcome Genome Campus conference centre for RAREsummit this week.
Rebecca Pender came from Glasgow to share her story at the recent RAREfest event, a world-first rare disease conference open to the public. Her talk at the Guildhall was tremendously moving.
Heartwarming, uplifting and informative, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall at the weekend (November 30/December 1). RAREfest was organised by Cambridge Rare Disease Network (CRDN) to “engage, educate and empower” those with rare diseases, their families, researchers, clinicians and support groups.