Playing a Paralympic sport for Britain, and learning the hard way how to deal with setbacks, have helped Sarah achieve her ambition of becoming a doctor, despite having a rare eye disease.
Cambridge Rare Disease Network is gearing up for its 4th RAREsummit on September 23 at the Wellcome Genome Campus and excitement is building for what promises to be an innovative event challenging the status quo.
Coming to Cambridge next month, RAREfest is an innovative new event geared towards educating the public about rare diseases through hands-on exhibitions, inspiring performances and talks with expert speakers.
Imagine living with one of the world’s rarest medical conditions, to then discover you have another one… with the unexpected melodramas that are worthy to be in a book. As it happens, Dan Jeffries is one such phenomenon. And yes, he’s even published his own memoirs!
I spent yesterday in Cambridge at the Cambridge Rare Disease Network Summit 2016. CDRN is run by the amazing Kay Parkinson, who lost her two children to Allström syndrome, whose moving and inspiring story we told recently on SNJ.
Suzanne Morris and Lynn Laidlaw have collaborated, using Suzanne’s graphic design skills and wonderful artistic vision, to create a patient journey poster submission for the Cambridge Rare Disease Summit this month, in Cambridge at Robinson College, (#CRDN2017).