On the 9th Jan 2021, the Department of Health and Social Care has published the UK Rare Diseases Framework, which replaces the previous UK Strategy for Rare Diseases published in 2013.
Front page news
Cancelled! Postponed! How do we roar for rare in the midst of a crisis?
At CRDN our focus is on raising awareness and building networks to address the unmet needs of those affected by rare disease and the professionals that work with them. So how do organisations like ours maintain momentum during this extended period of lockdown? We...
Pharma Market Europe Award Winners for RAREfest18!
We are feeling very humbled and proud to have learnt today that Cambridge Rare Disease Network (CRDN), with the support of med comms company Havas Life Medicom, were awarded winners of a ‘Judges Special Recognition Award’ at the Pharma Market Europe Awards #PMEA2019...
Adam Pearson: Actor, TV presenter and campaigner speaking and exhibiting at #RAREFest18
Breaking news!! RAREfest18, which already had an amazing line-up, just got even better... Adam Pearson and Dagmar Bennett in conversation will talk us through their collaboration to create this wonderful sculpture of Adam. Their talk will be part of...
Healx raise funding to repurpose drugs for rare diseases
Congratulations to Cambridge start-up, Healx, co-founded by founder and trustee of CRDN, as it raises $10m to help repurpose drugs for rare diseases. Forbes and the Telegraph today report that the co-founders of Healx, Tim Guilliams - founder and trustee of...
CRDN Summit 2017 – The Film
We collaborated with Lucia Tambini, film maker producing films for charities including Oxfam, Tourettes Action, SeeAbility and Walk the Walk, to capture the essence of our annual summit in 2017 and what it is about our city of Cambridge which offers great...
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