External Blogs

Our trip to RAREsummit19

Our trip to RAREsummit19

On 23rd September, Rick and Mary Rose attended Cambridge Rare Disease Network’s RAREsummit at the Wellcome Genome Campus in Hinxton.

Eastern AHSN supports RAREfest in shining a light on innovation

Eastern AHSN supports RAREfest in shining a light on innovation

In supporting RAREfest 2018, the ‘first-of-its-kind’ rare disease-inspired festival in Cambridge, we helped to shine a light on innovations that aim to address the challenges. The Cambridge Rare Disease Network (CRDN) brought together stakeholders in the rare disease community and the region’s public to raise awareness of rare conditions and to showcase innovative solutions.

RAREfest18: A 2-day rare disease inspired festival

RAREfest18: A 2-day rare disease inspired festival

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. Free to attend, this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this.

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