Ring20 Research and Support UK share their take home messages and collaborations from #CRDN2017 Summit
Allison Watson of Ring20 Research and Support Uk attended #CRDN2017 summit with her Patient Journey Poster.
“A great innovation of the conference and real highlight for us was the patient journey poster competition. Prior to the conference, we were 1 of 33 different patient groups who took the time to produce posters to summarise their rare condition and their own patient journey. I (Allison) have never produced a poster before and have no background in Graphic Design, but with some guidance from the lovely CRDN team I gave it a go, because I felt the importance was in getting the word out about r(20) syndrome, how it affects us and what we want, not the quality of my artwork!”