Contact CamRARE

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Join the Cambridge Rare Disease Network on Jeans for Genes Day 22 Sept 2017

Join the Cambridge Rare Disease Network on Jeans for Genes Day 22 Sept 2017

by | Jul 5, 2017 | Front page news, Fundraising

Join the Cambridge Rare Disease Network on Jeans for Genes Day!

Apply for your free fundraising pack to support Cambridge Rare Disease Network and Genetic Disorders UK.

Did you know that half a million children in the UK are affected by a life-altering genetic disorder? Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take place on Friday 22nd September, and to aachieve an even greater impact, GDUK are partnering with smaller genetic disorder charities like CamRARE to help them spread the word, and in return, split the proceeds.

Cambridge Rare Disease Network - Join the Cambridge Rare Disease Network on Jeans for Genes Day 22 Sept 2017 1
As hundreds of schools and workplaces take part each year, this is a great way for your pupils and colleagues to feel like an important part of the wider movement to end genetic disorders. For schools, it is also an opportunity for you to educate your students about the science of genetics, to promote equality of people affected by rare conditions, and to highlight the importance of charity and social responsibility.
Cambridge Rare Disease Network - Join the Cambridge Rare Disease Network on Jeans for Genes Day 22 Sept 2017 2
Would you or your school or workplace like to take part in this year’s Jeans for Genes Day for CamRARE?

All you have to do is sign up on the official GDUK page, choosing Cambridge Rare Disease Network as your partner from the drop-down list, and encourage your pupils or colleagues to wear jeans on the day in exchange for a small personal donation. Extra fundraising iideas, such as cake sales or quizzes, are most welcome too!

Once you transfer the proceeds to GDUK, they will then transfer half to us for everyone we help to sign up. One exception – if you’ve taken part in Jeans for Genes Day in the last three years please DO  take part, but all of the money raised will go to GDUK.

Cambridge Rare Disease Network - Join the Cambridge Rare Disease Network on Jeans for Genes Day 22 Sept 2017 3

Need some help? The Jeans for Genes website is packed full of helpful resources like posters, sponsorship forms, educational leaflets, assembly ideas etc. for schools, nurseries and workplaces a social media pack and arts and crafts ideas.

The of the money donated to us on Jeans for Genes Day will be used to help CamRARE develop a regional network and forum of Rare Disease patients and their advocates and families, to support our Unique Feet children and young people’s social group and to run exceptional Rare Disease educational and networking events. Raising the profile of Rare conditions and valuing, celebrating and supporting those living with Rare Disease through life’s journey could be something you and your team or school could help us make this happen. If you have any questions about CamRARE or Jeans for Genes Day, please don’t hesitate to get in touch.

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