Unique Feet: a contemporary dance group for children with rare diseases
We often think of rare diseases in medical terms and it’s easy to lose sight of the children and families at the heart of our work. So, for the recent charity ball hosted by Sobi, the CRDN formed a contemporary dance group – ‘Unique Feet’ – featuring children with rare diseases.
The kids rehearsed together weekly for several months, and over that time a lovely sense of community has emerged. We hope to continue this… stay tuned!