AKU Society on rare disease nursing

AKU Society on rare disease nursing

AKU Society on rare disease nursing

Cambridge Rare Disease Network - AKU Society on rare disease nursing 1
Nurse Specialists provide expert advice related to specific conditions, providing specialist advice and psychological support for both the patient and family.

Patients consistently rate their Nurse Specialist as higher than other health professionals in terms of both their honesty and of understanding their needs.

Read more at the AKU Society blog.

Rare disease nursing in Cambridge: a debate

Rare disease nursing in Cambridge: a debate

Rare disease nursing in Cambridge: a debate

.With 1 in 17 Britons born with or developing a rare disease, and with medical advances offering exciting new treatments to extend the lives of rare disease patients, we need innovative new options in holistic, patient-centred healthcare – such as rare disease specialist nurses.

Current care options for rare diseases put the burden on the patient to navigate multiple specialists, cover expensive travel and potentially spend long spells in hospital. This results in missed diagnoses, missed opportunities for treatment and leads to higher healthcare costs for patients and healthcare networks.
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