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Cambridge 
Rare
Disease
Summit
14 Sep, 2015

CamRARE 2015 SUMMIT AGENDA

Cambridge Rare Disease Network - 2015 Summit 1
Cambridge Rare Disease Network - 2015 Summit 2

CamRARE 2015 SUMMIT Delegate Booklet

For the full programme from the day, speaker bios and sponsors, view or download the delegate booklet

Cambridge Rare Disease Network - 2015 Summit 3

SPEAKER PHOTOS

Cambridge Rare Disease Network - 2015 Summit 4

CamRARE Summit 2015 – 01

Cambridge Rare Disease Network - 2015 Summit 5

CamRARE Summit 2015 – 02

Cambridge Rare Disease Network - 2015 Summit 6

CamRARE Summit audience

Cambridge Rare Disease Network - 2015 Summit 7

CamRARE Summit 2015 – 04

Cambridge Rare Disease Network - 2015 Summit 8

CamRARE Summit 2015 – 05

Cambridge Rare Disease Network - 2015 Summit 9

Jonathan Milner

Cambridge Rare Disease Network - 2015 Summit 10

CamRARE Summit audience

Cambridge Rare Disease Network - 2015 Summit 11

Hermann Hauser

Cambridge Rare Disease Network - 2015 Summit 12

CamRARE Summit networking

Cambridge Rare Disease Network - 2015 Summit 13

CamRARE Summit 2015 – 10

Cambridge Rare Disease Network - 2015 Summit 14

CamRARE Summit 2015 – 11

Cambridge Rare Disease Network - 2015 Summit 15

Kay Parkinson

Cambridge Rare Disease Network - 2015 Summit 16

CamRARE Summit 2015 – 13

Cambridge Rare Disease Network - 2015 Summit 17

CamRARE Summit 2015 – 14

Cambridge Rare Disease Network - 2015 Summit 18

Sue Berry

Cambridge Rare Disease Network - 2015 Summit 19

Alastair Kent OBE

Cambridge Rare Disease Network - 2015 Summit 20

CamRARE Summit audience

Cambridge Rare Disease Network - 2015 Summit 21

Abbey Brown

Cambridge Rare Disease Network - 2015 Summit 22

Prof. Stephen Hawking

VIEW THE SPEAKER PRESENTATION SLIDES
















FEEDBACK & PRESS COVERAGE

Cambridge Rare Disease Network - 2015 Summit 23

Pharmaphorum

Tackling the rare disease conundrum with passion, innovation and investment.

Cambridge Rare Disease Network - 2015 Summit 24

Nesta

Collective intelligence at the Cambridge Rare Disease Network.

Cambridge Rare Disease Network - 2015 Summit 25

eCanver

Linking cancer with rare disease.

Cambridge Rare Disease Network - 2015 Summit 26

Linguamatics

More interest in Rare Diseases: Cambridge Rare Disease Summit, & FDA new draft guidance.

Bluebee is a genome analytics platform that addresses the challenges of handling vast quantities of genomic data. Their services combines cloud-based high-performance computing
with best-in-class NGS data analytics to provide fast, accurate analysis on a large scale. They were a sponsor of the 2015 Cambridge Rare Disease Summit.

They published a great summary of some of the ideas discussed on the day. Here’s an excerpt:

For decades, rare diseases has not been an area of focus for the pharmaceutical industry. The root cause does not solely rely within the complex economics associated with rare diseases, but also in the fact that research and development is seriously hampered due to their extreme complex biological origins.

However, things changed for the better as rare and ultra-rare conditions became a prime focus for drug development: drugs known as orphan drugs.

The change happened so rapidly that 17 out of 41 new drugs approved by the FDA have been for rare diseases. Without a doubt this is immensely benefiting for patients, their families and hospitals. When scientific advancement meets technological innovation the unimaginable becomes possible.

Bluebee.com blog 2015